I am making my mark on lupus!
Join me and support the mission of the Lupus Foundation of America! My goal is to raise critical funds for the estimated 1.5 million people living with lupus in the United States. Your donation will help me reach my personal fundraising goal and support the Foundation's efforts to improve the quality of life for all people affected by lupus!
Did you know?
- Lupus is a complex disease that is hard to define. It strikes without warning, affects each person differently, and has no known causes or cure.
- While lupus mainly affects women between the ages of 15-44, men and children are not spared.
- Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys.
- Only one drug has ever been developed and approved by the US Food and Drug Administration specifically to treat lupus.
Let's end this cycle now! By making a donation today you are joining the fight against lupus!
MY STORY: It’s crazy how much your life can change in such little of time. From being a perfectly healthy individual to not even being able to walk down the stairs… I’m a 20-year-old young woman and I feel as if I’m 80. The hardest part is that I look fine on the outside sometimes, and that’s why people don’t believe I’m sick. What’s even worse is knowing that there is really nothing to cure me. So will I have to live with this my whole life? Can I handle the constant fatigue, shaking, night sweats, weight loss, trouble breathing, memory loss, nails falling off, nail discoloration, headaches, face rashes, swollen and painful joints, heavy nose bleeds, broken capillaries, red eyes, heart palpitations, high anxiety, etc. My day is now revolving around taking my medication at the correct time and amount, and if I don’t take it then I start to feel sick. This is now my life; I have really good days but when I have bad days, they are the worst. The fatigue is the worst of it all. I will not have any energy to physically move, and so I cannot eat or drink or do anything for myself because the pain is not worth moving. I am so fatigued that my sides start to hurt from lying down for so long. People just think I’m lazy and my teachers don’t understand why I’m missing so much class. They ask for a doctors note but why would I go to the hospital when I already know what’s wrong and that there is no way to help me? It sucks when your teachers don’t believe in you and everyone says, “Well if you’re that sick then take a medical leave.” No, I don’t want to give up. I don’t want to be behind in school. I don’t want this chronic illness that will never go away ruin my life. The lack of support is what is most stressful because no one really understands unless they actually have it. Its scary not knowing what organs it is affecting next; first its my circulatory system, then its my adrenal gland, then it is my eyes. The fact that it is so unpredictable that you can one day possibly go blind is ridiculously scary. I’m in pain, I’m scared, I’m tired… every day of my life and I will be for the rest of my life. There is only so much they know about Lupus and other autoimmune disorders. They have provided us with a general medication and chemo drugs to prolong our lifespan and quality of life but, in reality there is no cure. This is hard to live with. Being a science major and interested in the field of medicine, I support every effort to any kind of research being developed on autoimmune disorders. So please, help spread awareness so maybe one day people will be more understanding or more supportive of people like me.